Watching: What tysabri has done for me

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Thank You!
By: vbeachy. on 09 Aug 08, 00:38:50
Thank You!

Thanks Vern... ...
By: cdp123456. on 08 Aug 08, 23:44:28
Thanks Vern...thankyou so much for posting these comments regarding Tysabri, PML potential, and what a tremendous benefit this treatment has been for you. God Bless you mate...

Inspiring for sure! ...
By: TulsaLaniB. on 07 Aug 08, 05:24:08
Inspiring for sure! Vern, u give me courage to ask Dr and maybe start Ty. Your courage in 2006 was awesome too, I don't know I'd do as well as you have, if I lost my hubby. I won the MS lottery in '98, after 10 yrs with him. He is sticking it out w/ me, he's an inspiration too. I use a stick to walk w/, a scooter for long distance. I travel to CA every yr., so far I'm blessed. I've always felt lucky this didn't hit me when I was 22, instead of 42. I wouldn't be here now. C ya, stay well.

Thank you! I am so ...
By: vbeachy. on 27 Jul 08, 01:29:11
Thank you! I am so glad you found my Tysabri videos and I hope it does for you what it has done for me! Vern Beachy

g'day beechy as a ...
By: workinclassman72. on 26 Jul 08, 14:16:38
g'day beechy as a mser who's due to start on tysabri next week i have to tell you i found your video's at the right time! Thank you heaps mate.

Thanks Garry! Vern ...
By: vbeachy. on 25 Jul 08, 09:17:40
Thanks Garry! Vern Beachy

the guy who posted ...
By: garryniceguy. on 25 Jul 08, 09:14:24
the guy who posted this video is a inspiration to all.

It's not far off, ...
By: drodga. on 05 Jun 08, 00:22:44
It's not far off, antyone will tell you in the field of MS treatment. That or stem-cell symptom reversal! YAY!!

Let's hope for a ...
By: vbeachy. on 05 Jun 08, 00:19:28
Let's hope for a cure!

This is SO ...
By: drodga. on 05 Jun 08, 00:03:41
This is SO refreshing to watch! I'm lucky, doing pretty well on Avonex (Tysarbiri is licensed for Secondary Progressive only in the UK and I've relapsing/remitting and getting about 'ok' with one stick so I don't and can't complain! I even work full-time with teenagers in a local college here and have been SO fortunate after a few very dark years. So nice to see how this gent has benefitted; wonder if it'll be my turn one day?! It'll be cured soon anyway! :P Andy!

Tysabri is the ...
By: vbeachy. on 05 May 08, 18:30:42
Tysabri is the latest drug to treat MS. It has been on the market for almost 2 years now.

Thank you what is ...
By: avrillavigneissexy. on 05 May 08, 17:21:54
Thank you what is tysabri?

Absolutely Aiden, I ...
By: vbeachy. on 05 May 08, 14:19:22
Absolutely Aiden, I will be your friend! Please feel free to talk with me about anything. :)

Hi my name is aiden ...
By: avrillavigneissexy. on 05 May 08, 14:15:50
Hi my name is aiden and my mum died last year i am 12. But my mum died last year because of multiple sclorosis and she was in a wheel chair.She had no medicen or anything so she died. :-( i would love you be your friend and i wil subscribe you! XXXXXX (aiden)X

I wouldn't put it ...
By: mikecat23. on 15 Apr 08, 08:14:41
I wouldn't put it past you. You might even win haha.

It's in the cards! ...
By: vbeachy. on 15 Apr 08, 07:51:51
It's in the cards! LOL

Wow Vern, your ...
By: mikecat23. on 15 Apr 08, 07:46:52
Wow Vern, your whole attitude is so positive it's amazing to just watch you. Have you set up a marathon to run in yet lol.

I am so glad I can ...
By: vbeachy. on 12 Apr 08, 08:35:08
I am so glad I can help. I hope Tysabri does for your boyfriend what it has done for me!

Vern, this is an ...
By: bconrade884. on 12 Apr 08, 02:19:15
Vern, this is an excellent video. My boyfriend was diagnosed with MS 6-6-06 and he did Rebif for one full year, the side effects made his quality of life horrible. Now the Dr wants him to consider the Tysabri, and you have helped with the decision, thank you so much.

Way to go, Vern! ...
By: paulo1149. on 12 Apr 08, 00:15:26
Way to go, Vern! All the best. GB, paul

Thanks Fixer!
By: vbeachy. on 11 Apr 08, 00:00:50
Thanks Fixer!

OUTSTANDING!!! ...
By: Fixer13605. on 10 Apr 08, 23:47:45
OUTSTANDING!!! Tysabri will be back on the market for two years this coming July and the Touch program seems to have done a wonderful job of avoiding any potential problems before they arise, we can only hope that reaching this time benchmark and videos such as yours and others will help others to feel safe in their decision to try Tysabri. Thanks for all that you have done! BOL Fixer

You are inspiring!
By: dgalexandermd. on 10 Apr 08, 17:52:41
You are inspiring!

I was diagnosed ...
By: vbeachy. on 10 Apr 08, 17:45:08
I was diagnosed with MS eight years before Tysabri. Canadian crutches are forearm crutches, like Kerry in the TV show ER uses. I walked freely, although a bit slow, the day aftermy thirs infusion. I can now walk up to a mile before I get real tired.

How long did you ...
By: dgalexandermd. on 10 Apr 08, 17:41:28
How long did you have symptoms before Tysabri? How long after you got out of the wheelchair did you walk freely? What are Canadian crutches?

Four Fantasy Novel Writers Blog
Writers writing about writing.

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Heaven Only Knows
Posted by: vbeachy

Video duration: 225 seconds

Another tribute to my lovely wife, Melinda, Heaven only knows when I will be with you again.

Related: beachy, emmylou, harris, melinda, suicide

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Latest comments made on this video:

the sopranos s5 ! :)
By: niakoloner. on 18 Nov 08, 18:34:00
the sopranos s5 ! :)

Great job, and so ...
By: Anyu7378. on 22 Oct 08, 11:34:11
Great job, and so sorry for your loss. Peace, andrea.

I am humbled. Thank ...
By: vbeachy. on 20 Oct 08, 00:08:32
I am humbled. Thank you.

Dude, I used to ...
By: spuckunkle. on 19 Oct 08, 23:58:19
Dude, I used to love this song, now I see your loss, your pain, your emptiness. I am so very sorry for yor loss. I mean that from my heart.

Thank you, yes, it ...
By: vbeachy. on 19 Oct 08, 23:05:02
Thank you, yes, it was very emotional putting it together.

I'm serious, you ...
By: spuckunkle. on 19 Oct 08, 22:45:24
I'm serious, you made me cry.

You make me cry, ...
By: spuckunkle. on 19 Oct 08, 22:39:59
You make me cry, cut it out.

Ok, Ty. ^^
By: Sturtevent. on 19 Oct 08, 16:30:12
Ok, Ty. ^^

Emmylou Harris. :)
By: vbeachy. on 19 Oct 08, 12:49:57
Emmylou Harris. :)

Im sorry, I asked ...
By: Sturtevent. on 19 Oct 08, 12:48:32
Im sorry, I asked wrong. I mean by who?

Heaven Only Knows. ...
By: vbeachy. on 19 Oct 08, 10:19:39
Heaven Only Knows. :)

What is name of ...
By: Sturtevent. on 19 Oct 08, 10:02:51
What is name of this song?

Wow...that is quite ...
By: vbeachy. on 18 Sep 08, 23:38:17
Wow...that is quite a compliment. Thank you!

i can see you ...
By: bujwik. on 18 Sep 08, 21:54:53
i can see you through her...

So sorry for your ...
By: ChipHugger. on 17 Sep 08, 00:01:51
So sorry for your loss. Here I am feeling sorry for myself because of my pending divorce. God bless you.

Yes, indeed, ...
By: vbeachy. on 20 Aug 08, 13:45:19
Yes, indeed, Melinda is beautiful. Thanks you for your comments.

I love emmylou and ...
By: puppyloverr185. on 20 Aug 08, 13:43:17
I love emmylou and this song. Couldn't find it anywhere except the opening and ending credits of a Sopranos episode. I watch this over and over to listen to the song but it's all very sad. Melinda is beautiful.

Its one of the best ...
By: martinwilliamrandall. on 07 Aug 08, 15:36:15
Its one of the best songs ive ever heard. The dialogue is very tragic but the music is so up beat. Thats what I call Country at its very best.

I love it!
By: vbeachy. on 07 Aug 08, 15:21:39
I love it!

Brilliant I first ...
By: martinwilliamrandall. on 07 Aug 08, 14:59:49
Brilliant I first heard this tune on the opening & ending credits of Sopranos Season 5 Episode 1

oh man...I've been ...
By: vbeachy. on 05 Jun 08, 20:22:49
oh man...I've been crying for 2 years now.

Oh man two slides ...
By: EVANDBRITT. on 05 Jun 08, 18:17:54
Oh man two slides into this and I'm now strictly listening and not watching or I will bawl at work and embarrass myself! I'm sorry for what you're temporarily missing :)

Thank you for your ...
By: vbeachy. on 02 Jun 08, 13:09:50
Thank you for your comment.

Wow, that's very ...
By: johnnythefox22. on 02 Jun 08, 12:42:37
Wow, that's very moving. I'm sorry for your loss.

Heaven only knows ...
By: vbeachy. on 01 Apr 08, 12:35:16
Heaven only knows how much I miss Melinda. Thank you

The Letter
Posted by: vbeachy

Video duration: 364 seconds

This song by Robert Plant and Alison Krauss prompted me to compose this latest tribute to Melinda, who passed away on June 2nd, 2006.
It is significant to me because I am currently writing a memoir that is written in the form of a letter to Melinda.

Related: alison, beachy, krauss, melinda, plant, robert, suicide

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This video never ...
By: bevaneachy. on 16 Nov 08, 11:26:40
This video never fails to deliver(no pun intended).

Melinda was an ...
By: vbeachy. on 11 Oct 08, 13:26:25
Melinda was an absolutely beautiful person. Thanks. At a time when my MS was progressing quickly, she lost her job (and health insurance) and she hung herself late that night.

I've seen this ...
By: lizzy890. on 09 Oct 08, 14:42:45
I've seen this video before..and I am sorry for your loss, I apologize for such an inappropriate question, but what happened to this beautiful person?

Thank you.
By: vbeachy. on 14 Aug 08, 12:18:53
Thank you.

Melinda was, indeed ...
By: vbeachy. on 14 Aug 08, 12:18:29
Melinda was, indeed, a very beautiful woman.

this is very ...
By: lizzy890. on 13 Aug 08, 17:47:39
this is very beautiful. she was a beautiful woman.

THIS WAS BEAUTIFUL ...
By: blondehell28. on 01 Aug 08, 09:32:31
THIS WAS BEAUTIFUL TO WATCH.

Thank you! It is ...
By: vbeachy. on 15 Jul 08, 10:00:56
Thank you! It is called "A Tear-Stained Letter"

When you get your ...
By: stillgotmydreams. on 15 Jul 08, 06:53:37
When you get your memoirs published, please let us know the title, would love to read the story. God bless you!

Thank you very much ...
By: vbeachy. on 13 Jul 08, 11:12:49
Thank you very much! Yes, I feel Melinda is smiling down on me.

Beautiful! I wish ...
By: stillgotmydreams. on 13 Jul 08, 09:19:50
Beautiful! I wish you the best, may God go with you and know Melinda is smiling.

Thank you so much!
By: vbeachy. on 25 Jun 08, 23:23:09
Thank you so much!

This song is so ...
By: ashtonsgirlh. on 25 Jun 08, 22:04:11
This song is so beautiful and means so much to so many people including myself. I think what you are doing is beautiful and what a fitting song. may you be blessed!

Wow...thanks Bro!
By: vbeachy. on 27 May 08, 12:20:23
Wow...thanks Bro!

All I have to say ...
By: bevaneachy. on 27 May 08, 09:01:46
All I have to say is, that she is soooo cool. She is great! Love her!! God Bless you,Vern! May you find another Mel. Bless you! Love you, Man. Evan

oohh,wow. Can't ...
By: bevaneachy. on 27 May 08, 00:05:50
oohh,wow. Can't judge a life by the traffic you come across everyday. There's simply more to it than the man in the car next to you. There's more than just the people you touch with your day.

I have to thank you ...
By: bucks932. on 21 May 08, 20:25:50
I have to thank you for the reply. I didn't expect it. I was having a somewhat "bad" day at work, took a lunch break to look at a video, and was looking for the video that goes with that song and yours came up. After looking at it, crying, I started to think that my day wasn't all that "bad" after all. I can imagine you miss your love very much. That must be very hard. Take care, Pattie

I, too, was very ...
By: vbeachy. on 21 May 08, 20:02:17
I, too, was very fortunate to have Melinda! Thank you Pattie.

Your tribute and ...
By: bucks932. on 21 May 08, 18:52:04
Your tribute and song brought me to tears. How much you loved Melinda!!! How fortunate she was to have you. Best Wishes and Love from Pattie in Michigan

god bless
By: davidakadaveakadavy. on 09 May 08, 18:44:56
god bless

Thank you so much, ...
By: vbeachy. on 07 May 08, 22:43:44
Thank you so much, Mike.

I am a young man ...
By: zimecterin. on 07 May 08, 22:42:08
I am a young man just atarting a relationship and I was touched by this tribute I think as young people now a days we do not think of growing old with our mates rather then the here and now I take this aspect into more consideration after seeing this your tribute brings me to tears everytime I view it Thankyou for showing me longterm love rather then short term lust.My thoughts and and cares are with u God Bless. -Mike-

You are welcome! I ...
By: acosmotea. on 25 Apr 08, 02:50:36
You are welcome! I thank you for posting this video, I watch it often and have it favorited on Youtube just to remember the precious true love I am grateful for having and I am so moved by what you two shared. I sincerely mean this. Bless you today and always.

Thank you :)
By: vbeachy. on 25 Apr 08, 00:02:37
Thank you :)

I just could not ...
By: LoopyTheBubblebrain. on 24 Apr 08, 22:45:20
I just could not help crying, very moving. God Bless x

Tysabri Infusion #22
Posted by: vbeachy

Video duration: 220 seconds

Update on my continuing recovery from the new MS drug Tysabri

Related: beachy, multiple, sclerosis, tysabri

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Latest comments made on this video:

Thanks Marilyn! My ...
By: vbeachy. on 02 Aug 08, 11:55:14
Thanks Marilyn! My quality of life is improved dramatically because of Tysabri!

I went to an estate ...
By: mgresham3. on 02 Aug 08, 04:52:26
I went to an estate workshop put on by the Lone Star MS chapter and there were very few people in chairs. Because of Tysabri I was able to WALK in and around for a long time. Eventually got my chair out because the bath room was so far away and I am still not used to walking so far. It is more the neuropathy that get me than the MS. Love your updates. Marilyn

Hi Elise; Yes and ...
By: vbeachy. on 27 Jul 08, 23:58:10
Hi Elise; Yes and no to your question. Yes, I have heard of the word but not in the context of MS. However, my wife told me that a woman said to her one time that she "knew my husband had MS because he was happy all the time." That has always struck me as an odd and curious comment, but I think it goes to what you are saying.

Hi vern! I was ...
By: H2OGRRLY. on 27 Jul 08, 23:13:18
Hi vern! I was curious if you have ever heard of the word "ebullience", it means overly excitable,and sometimes inappropiate in behavior. I have a good friend who is a pharmacist, and whose husband is a rehab Doctor. My friend told me that because of my behavior, that her husband noticed that I was showing 'ebullience' due to MS. I've noticed an other woman behaving this way at the place I get my Tysabri Treatments. Thanks, Elise

Hi Angie; My 3rd ...
By: vbeachy. on 11 Jul 08, 09:45:09
Hi Angie; My 3rd Tysabri infusion was pivotal, but that may not be the case for everyone. No, I haven't experienced spasticity since starting Tysabri. In fact, I quit taking Baclofen the day I started walking and haven't taken any since. I hope you continue to have a great experience with Tysabri! Vern Beachy

Hi Vern, Great ...
By: nuyrbb. on 11 Jul 08, 02:36:09
Hi Vern, Great video updates! Question for you, I just watched your brain fuzz video. I am getting my third Tysabri infusion next Friday. It is going well especially for the first three weeks. I can't wait until the next one. I've experieced more full body spasitity since I started the infusion then ever before. Did you experience that? I have Dr. appt next week and plan to ask him too. So far Tysabri is great. Thanks, Angie (Chicago)

No anti-bodies is ...
By: qualisarx. on 07 Jul 08, 22:15:52
No anti-bodies is definatly a good sign! Good to see the updates!

Good to hear you're ...
By: bevaneachy. on 07 Jul 08, 04:46:22
Good to hear you're feelin' good. We'll have to go check out "Bucket" the next time he's in Omaha or Iowa. See ya later!

Hi Steve; Yes, all ...
By: vbeachy. on 04 Jul 08, 19:51:22
Hi Steve; Yes, all of them are MS patients and I haven't heard anything about this MS center giving it for Crohn's now.

Great! Please let ...
By: vbeachy. on 04 Jul 08, 19:49:38
Great! Please let me know how it goes for you!

Thanks for keeping ...
By: RaspScotty. on 04 Jul 08, 16:31:18
Thanks for keeping all of us updated. If the insurance company verifies that they will reallly pay for it, I'm getting my 1st Tysabri infusion next Wednesday! Thanks again.

Hi Vern, Well ...
By: 7mumfred7. on 04 Jul 08, 15:22:34
Hi Vern, Well that 40 on Tysabri sounds great, and they are all doing better. Are they all MS patients ? Just looking for any signs that they are giving it for Crohn's now. Steve

Hi KC! Good to hear ...
By: vbeachy. on 04 Jul 08, 15:13:52
Hi KC! Good to hear from you again. At the Des Moines Ruan MS center there are about 40 other people getting monthly Tysabri infusions. Some are doing very well and all report that Tysabri makes them feel better. I feel better because I can walk, but the buzzing and burning and the fatigue is still pretty bad.

Great to see you ...
By: kcsportsfan. on 04 Jul 08, 13:59:42
Great to see you doing so well. Curious what is your doctor saying about Tysabri. Is he using it on other patients. You are a great role model for others. I hope the doctors are paying attention to your results. Be well

Hi Lauren! Good to ...
By: vbeachy. on 03 Jul 08, 19:53:59
Hi Lauren! Good to hear from you again! The damage may be permanent, but the doctors also told me that Tysabri will not fix disability, but I ditched my wheelchair and crutches. There is hope!

Oh Vern, How ...
By: msladyinca. on 03 Jul 08, 19:21:16
Oh Vern, How wonderfully you are doing! I go for my 23rd Tysabri infusion next Wednesday... I can hardly wait! Even though I'm still in a wheelchair, Tysabri has kept my MS stable (remember, I have had MS for 32+ years, so my damage is probably permanent). Nevertheless, I'm so happy that I'm not getting worse, woo hoo! Again Vern, congratulations to you..., All the best, Lauren :)

Thanks Doug! I hope ...
By: vbeachy. on 03 Jul 08, 02:49:03
Thanks Doug! I hope other MSers can also enjoy what I am getting back.

Hello again, Vern. ...
By: kayaksurfer70. on 03 Jul 08, 02:46:32
Hello again, Vern. Your videos are marvellous?your words give many other MS victims a chance to reclaim their quality of life. Keep up the good work, and may your own quality of life continue to improve. Watching your videos, no one would ever guess you had MS. Best, Doug

Tysabri - walking problem
Posted by: vbeachy

Video duration: 178 seconds

I am reluctant to post this because I have been doing SO well on Tysabri, but it's not all rosy, as you can see.

Related: beachy, multiple, sclerosis, tysabri

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Latest comments made on this video:

Vern you are a ...
By: bonnie9900. on 19 Nov 08, 21:59:18
Vern you are a inspriration for all of us MS'ers. I have been torn with using tysabri. But with the information I have found from you and others here. I just might go for it. The wheelchair thing is getting boring. Its time to get up and walk. God bless you and keep you well. Thank you for sharing. Bonnie

Hi Eddy; So glad ...
By: vbeachy. on 20 Sep 08, 11:21:00
Hi Eddy; So glad Copaxone is working for you. I was also 34 when I was diagnosed. Thank you for your prayers!

Vern, I was ...
By: eddysacat. on 20 Sep 08, 03:45:17
Vern, I was diagnosed 8/2008 and I'm taking Copaxone. I'm 34 and once I was out of the hospital I was just about all normal in 10 days. I Have lesions all over my brain and spine. I quit counting when my dr. showed me the MRI. I'm really hoping that my disease is slow to progress. I'm praying for you. Thank you

hpoe that not the ...
By: jermeal385. on 19 Sep 08, 04:14:12
hpoe that not the case as well hopoe you get better soon god bless

Vern go to the ...
By: mikecat23. on 18 Sep 08, 21:28:09
Vern go to the bloody doc. Get a friend to take you now.

No (my bad) I ...
By: vbeachy. on 18 Sep 08, 18:57:16
No (my bad) I haven't. I am thinking this is a temporary situation, but, I know I should be going to Dr Hughes in Des Moines.

Vern - have you ...
By: dgalexandermd. on 18 Sep 08, 18:21:20
Vern - have you checked with your neurologist? ?

Thanks! Yes...a ...
By: vbeachy. on 18 Sep 08, 16:56:52
Thanks! Yes...a cool walk with Doug sounds great!

Hang in there Vern! ...
By: guitaraficionado. on 18 Sep 08, 16:54:51
Hang in there Vern! (I know that you will.) I'm sorry that things got a bit worse for you, but hopefully you'll get back to where you were with cooler fall temps on the way. (A cool walk in the park with Doug the Pug amongst fall leaves sounds nice.) My thoughts & prayers are with you.

Thank you very much ...
By: vbeachy. on 18 Sep 08, 10:51:17
Thank you very much. I am humbled by comments like yours. :)

Thank you so much ...
By: vbeachy. on 18 Sep 08, 10:50:38
Thank you so much for your prayers! I am sure I will recover very soon.

Be strong- we are ...
By: andie221. on 18 Sep 08, 08:12:22
Be strong- we are wishing you well. You give us hope - out prayers are with you for a speedy recovery.

I had my first ...
By: bvaleriea. on 18 Sep 08, 07:31:20
I had my first exacerbation in 10 years this past April....You have been my rock...I listen and watch all your videos. I was shocked and angry when the "attack" hit me...went from walking to a wheelchair in a day....but I am walking again...just much more slowly. I just am rambling here, but I feel I need to reach out to you like you did to me..... It does get better and you will too. Thank you for being so real!

Me too!
By: vbeachy. on 17 Sep 08, 21:47:59
Me too!

Glad you are still ...
By: 7mumfred7. on 17 Sep 08, 21:47:10
Glad you are still smiling there, and hope that it turns out just like those walk-in-the-park videos.

Thanks Cliff...yes, ...
By: vbeachy. on 17 Sep 08, 19:49:45
Thanks Cliff...yes, I think it is a temporary bump in the road.

hang in there. ...
By: cliff501. on 17 Sep 08, 19:40:22
hang in there. could just be a bump in the road. thank you for posting the bad as well as the good. get some rest. i really appreciate your videos.

Tysabri and PML
Posted by: vbeachy

Video duration: 192 seconds

2 new cases of the often fatal brain disease called PML are now reported in Europe.
Does THAT concern me? Nah...

Related: beachy, multiple, sclerosis, tysabri

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the decision to go ...
By: astronautsandwitch. on 26 Oct 08, 21:34:03
the decision to go on to on Tyis a personal one I was one of the first persons who got scared and dropped out after two months I went back on the drug! I figured 18000 have taken it for at least a year, 35500 currently taking it, 48000 have taken it at least once since it was introduced in clinical trials and we have seen 5 with PML! I think the risk is very very low! however the risk of MS progression to me is a reality! decision is yours! I had MS since 95 as well

Hi Mody...thanks ...
By: vbeachy. on 21 Sep 08, 20:53:54
Hi Mody...thanks for your email. Because Tysabri has been a wonderful drug for me I don't worry at all about PML. I no longer use a wheelchair or crutches and walking again is SO LIBERATING! Go for it!

Hi Vern ; Im a ...
By: medad1. on 21 Sep 08, 19:36:59
Hi Vern ; Im a multiple sclerosis patient since 1995, and recently I was diagnosed as ?Secondary Progressive Im a handicapped and I use the wheelchair all the ?time.my Doctor has prescribed the Tysabri for me but Im really afraid to take ?because of the side effects especially the PML? What can I do?? Regards Mody

Laurie; So sorry ...
By: vbeachy. on 23 Aug 08, 19:29:23
Laurie; So sorry to hear about your doctors cautious approach. But, in my opinion, it is not good when a MS patient feels like their doctor cut the legs from under them. I am just a layman, but I would say to get another doctor. Tysabri has improved my life 1000%!

My doctor was going ...
By: fiddler927. on 23 Aug 08, 19:25:35
My doctor was going to prescribe Tysabri for me; even had me fill out the paperwork, but she decided not to do it because of the new cases of PML. Needless to say, I am SO disappointed, and very frustrated. I know she's being cautious, but I feel as though I have had my legs cut out from under me.

Thanks Rich!
By: vbeachy. on 18 Aug 08, 17:09:39
Thanks Rich!

Yeah, Gary, quality ...
By: vbeachy. on 18 Aug 08, 17:08:55
Yeah, Gary, quality of life is a big thing for me (and other MS'ers too).

I see what it has ...
By: Westenhizzel. on 18 Aug 08, 03:56:55
I see what it has done for you and where you were before Ty. Even MS people have a hard time understanding this if they have exacerbations every 6-9 months. I have heard some of these folks claiming that what really pisses them off is that they can only play tennis for about an hour now. These were people in my support group who saw me getting around with my hotrod walker. As you know completely is that it is a matter of life quality.

Getting PML is so ...
By: d21rich. on 17 Aug 08, 22:37:02
Getting PML is so unlikely. You are more likely to be killed by getting hit on the head by a turtle dropped by an eagle flying overhead. Good luck, keep on keeping on. Rich (UK)

Thank you!. :)
By: vbeachy. on 15 Aug 08, 14:04:06
Thank you!. :)

lol wish u the best ...
By: jermeal385. on 15 Aug 08, 03:33:14
lol wish u the best love ya sence of humor

I understand your ...
By: vbeachy. on 10 Aug 08, 19:16:35
I understand your concern and I don't think ANYONE can fault you for doing that. I had my 23rd infusion on Friday and next month I will have been on Tysabri for 2 years. I am sticking with it because of what Tysabri has done for me.

Hi guys, my 18th ...
By: astronautsandwitch. on 10 Aug 08, 18:57:15
Hi guys, my 18th Tysabri would have been at the end of the month, but i already got a prescription for Copaxone and LDN. I m set to start that in mid September, as soon as tysabri wears off and is out of my body. I am not sure if this is the right decision, but i am affraid of PML. i m not affraid of dying. but i m affraid cuz pml is 10 times MS. any thoughts guys?

I'll talk a little ...
By: TulsaLaniB. on 07 Aug 08, 04:39:51
I'll talk a little & then quit! I'm watching your progress, & I too am seeking something to make me "feel good" again. The weirdest thing about MY situation, is before I went into menopause, I use to "feel good" during the yukky 5 or 6 days. Those days are gone & I no longer get days of relief. I will have to say Vern that your challenges have been many, & I understand about MS not being your biggest sadness. I get it. My hubby is very supportive, I don't know how well I'd do w/o him. Stay :-)'n

Well, I don't know ...
By: TulsaLaniB. on 07 Aug 08, 04:20:45
Well, I don't know which one of your videos to post on, so I'll just jump in on this one and start talkin'. I won the MS lottery in '98, the Neuro gave me a choice and I did nothing till Nov '99 when I had a REALLY bad episode. So then I did Avonex, till 2003 & now I'm on Copaxone. I'm seriously considering the Ty, w/ see my DR the 20th. The PML doesn't scare me as much as 10 years from now. I've started having bad problems '03. I use my scooter for long distance. I am a fighter, so gloves off.

I hope I am ...
By: vbeachy. on 07 Aug 08, 00:10:59
I hope I am completely right in my view of getting PML with Tysabri.

If there is ...
By: vbeachy. on 06 Aug 08, 21:08:38
If there is anything else I can do...please let me know! Vern Beachy

Thank you for ...
By: mlyons218. on 06 Aug 08, 16:49:26
Thank you for posting this update. My husband has MS and we discovered your videos about a month ago right before his first Tysabri infusion. I have to admit this news has me worried but the overall medication has me worried for him (i'm a worrier). I needed to hear your reaction to the news. Thank you for easing my fears somewhat.

I don't think there ...
By: vbeachy. on 03 Aug 08, 22:41:59
I don't think there is anything you missed. I am planning to take Option 2 and my 23rd infusion is scheduled for Friday, August 9th.

My friends! the ...
By: astronautsandwitch. on 03 Aug 08, 22:36:19
My friends! the fear of PML may be overblown but I think if u get it it is still bad,the options for me now as i see them are: 1-stop 2-continue 3-pause,wait & see for 3 to 4 months 4-Switch to copaxone+ LDN 5 stop and do nothing! 6 enroll in a trial is there anything i missed? please help m33

Ah I wish I had the ...
By: bvaleriea. on 03 Aug 08, 05:40:57
Ah I wish I had the courage to say PML is a non-issue. For me it is a very scarey issue. But then we all have to do what we feel is best for our own body and mind eh?

Thanks! It wasn't ...
By: vbeachy. on 02 Aug 08, 18:00:39
Thanks! It wasn't that long ago when PML was considered always fatal.

Great commentary! ...
By: Fixer13605. on 02 Aug 08, 17:24:02
Great commentary! The only thing I could add is PML IS NOW TREATABLE! A plasma exchange can be initiated to treat the patient, which is why the two recent cases are overblown. PML is no longer a mandatory death sentence, all drugs can have reactions, just not in everyone, I feel bad for those that had a reaction, because they are forced off the best form of treatment, but the fear of PML since it is now DIAGNOSABLE AND TREATABLE is IMO overblown. Glad to see that you're doing well!

good for you u ...
By: astronautsandwitch. on 02 Aug 08, 07:40:20
good for you u don't have to travel to get your Tysabri. I just had my 17th infusion a week ago. I am scared and for me I think I will probably pause for 3 to six month and wait and see. I think I am more stable on Tysabri but may be copaxone will do the trick again. I was on Copxone for 5 years and somewhat did work little until my MS got aggressive.Honestly I m confused. I don't know what I will do but I have 3weeks to decide! Good luck to you! Any advice?

Ha! Thanks Daniel!
By: vbeachy. on 01 Aug 08, 20:24:18
Ha! Thanks Daniel!

Led Zeppelin - Good Times Bad Times
Posted by: vbeachy

Video duration: 175 seconds

I put this picture movie together to mark the reunion gig of the best rock band ever.

Related: bad, good, led, times, zeppelin

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What Tysabri has done for me
Posted by: vbeachy

Video duration: 212 seconds

I am a huge Tysabri advocate

Related: beachy, multiple, sclerosis, tysabri

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